Douglas Brooks, the director of the Office of National AIDS Policy at the White House, delivers his keynote address at the International Conference on Stigma in Washington, D.C. (Freddie Allen/NNPA)
WASHINGTON (NNPA) – In an ongoing effort to combat the HIV/AIDS epidemic physicians, healthcare workers and human rights activists want the government and the public to place more emphasis on the stigma associated with the deadly disease that continues to plague the Black community.
According to the Centers for Disease Control and Prevention (CDC), Blacks “accounted for an estimated 44 percent of all new HIV infections among adults and adolescents (aged 13 years or older) in 2010, despite representing only 12 percent of the U.S. population.”
Not only are Blacks disproportionately affected by poverty, discrimination, higher rates of incarceration, but the CDC also lists those issues as well as the stigma associated with HIV/AIDS as socioeconomic risk factors contributing to the HIV/AIDS epidemic in the U.S.
Sohail Rana, an HIV/AIDS specialist and physician in the Department of Pediatrics and Child Health at Howard University Hospital said that because the Black community is the most affected by the epidemic, it’s up to Blacks to make it easier for other African Americans affected to come forward.
Rana questioned the effectiveness of investing billions in HIV vaccine research without adequately addressing stigma associated with the disease.
“How can you give someone the vaccine, if they won’t come forward to even get tested?” asked Rana. “We need to put some balance into these efforts to make people accept their brothers and sisters with HIV of color.”
HIV/AIDS activists praised President Barack Obama in 2009 for lifting the travel ban for people that are HIV-positive. The move cleared the way for the 2012 International AIDS Conference to be held that year in Washington, D.C.
According to The Henry J. Kaiser Family Foundation (KFF), a nonprofit focused on domestic and global health policies, the Obama administration requested $17.5 billion to care for people living with HIV in the U.S. and $929 million for domestic HIV prevention in 2015, a 1.3 percent increase over the 2014 request for prevention services.
The Kaiser Family Foundation also reported that the White House requested $57 million for the Minority HIV Initiative to “to address the disproportionate impact of HIV/AIDS on racial and ethnic minorities in the U.S.”
The goals of President Obama’s national HIV/AIDS strategy include: reducing new HIV infections, increasing access to care and improving health outcomes and reducing HIV-related disparities and health inequities.
Rana noted the efforts of Surgeon C. Everett General Coop in educating Americans about HIV/AIDS with his revolutionary pamphlet, titled “Understanding AIDS” that was mailed to more than 100 million households in 1988.
During his keynote address at the conference, Douglas Brooks, the director of the Office of National AIDS Policy, said he wants to issue a similar document, in print or online, during his term in office.
“The thing about going to every mailbox is that there was a chance that most Americans would have access to this document,” said Brooks, adding that HIV/AIDS knowledge among Americans appears to be fading, according to research conducted by KFF. Some people believe that can get HIV from toilets or dirty utilities. “The level of misinformation and lack of information is pretty high, so we definitely want to work on that.”
Brooks called for more conversations about the fear and shame associated with HIV/AIDS in professional and private settings.
Jorge Lander, a participant at the conference, agreed.
“There is little done in terms of normalization,” said Lander, who is also a community health worker with Us Helping Us, a nonprofit group that provides health and support services for Black men, women and youth living with HIV/AIDS in the Washington metro area. “We don’t make sex normal, we don’t make having [sexually transmitted diseases] normal, we don’t make having HIV and living with HIV normal, so we don’t create great spaces for disclosure.”
Lander said that addressing the stigma of HIV/AIDS is not just about sexual behavior, it’s also about poverty, unemployment, homelessness and substance abuse in the Black community. The problem is layered and complicated, Lander added, and he’s not sure if it’s being approached that way.
Approaching that stigma in that right way involves getting over the fear of opening up conversations about HIV/AIDS.
“If you’re sitting at the Thanksgiving table where we’re told that you don’t talk about sex, you don’t talk about religion, you don’t talk about politics, throw some fuel on the fire,” said Lander. “Just once bring up HIV. Ask if everyone at the dinner table been screened for HIV. We have to get out of our comfortable spaces. Education is the first thing to shift and everybody is an advocate. If we get that messaging out then people feel empowered to say ‘I can take care of myself, I can take care of my brother, I can help my sister out.’”
Rana said that addressing the stigma associated with HIV/AIDS requires a center that is constantly working and a that his group has presented a proposal to the Howard University board of trustees and the president.
Rana added: “There is no better place than [Howard University] to have it, because we have a long history of fighting for human rights.”